Scientific Conference

14 - 16 november 2023

HOSTED BY THE Escuela Andaluza de Salud Pública (easp) - cANCER rEGISTRY OF GRANADA


Orange to Yellow Gradient Background


KEYNOTE Presentations

Plenary Topics:

  • Cancer information in the era of Precision Medicine by DR MARINA POLLAN SANTAMARIA
  • International Classification of Diseases (ICD-11) and the International Classification of Diseases for Oncology (ICD-O) - Co Presented by Dr Eva Krpelanova and Dr Ariana Znaor
  • Cancer Surveillance in India – The Role of THE National Cancer Registry Programme BY Dr Prashant Mathur
  • the 50th Anniversary of the SEER Program in the United States, its History and Impact BY Dr Lynn Penberthy

  • COVID 19 - impact on cancer surveillance, services, and outcomes
  • Stage, comorbidities, and other prognostic information in cancer registration
  • Clinical applications - treatment, recurrence, and other outcomes
  • Descriptive epidemiology including special populations (e.g., children, adolescents and young adults)

Black Gradient Background


Dr Eva Krpelanova, is medical officer in the team of Classifications and Terminologies, World Health Organization (WHO).

She is a pathologist, worked in the Netherlands both in the clinical pathology and as a medical officer responsible for the mortality statistics at the Statistics Netherlands until joining WHO in 2021.

Eva is responsible for the medical related matters in the WHO – Family of International Classifications (WHO-FIC), especially International Classifications Diseases 11th revision (ICD-11). Eva was born and raised in Slovakia.

Dr Ariana Znaor, MD, MSc, PhD is a scientist at the International Agency for Research on Cancer (IARC). Within the Global Initiative for Cancer Registry Development program (GICR), she is responsible for coordination of the Regional Hub for Cancer Registration in Izmir (covering Northern Africa, Central and Western Asia).

Before joining IARC in 2013, Dr Znaor was the director of the Croatian National Cancer Registry for 13 years, as well as associate professor of epidemiology at the Andrija Stampar School of Public Health, Zagreb. She completed her MD, MSc and PhD degrees at the University of Zagreb, Croatia.

Her areas of expertise are cancer registration and descriptive epidemiology. She is one of the editors of the Cancer Incidence in Five Continents publications (Volume XI and Vol XII, in progress) with a specific area of interest in tumour classifications. Since the establishment of the Izmir Hub in 2013, she has organised more than 25 regional cancer registration courses, workshops and constant support to cancer registries in the Hub region. Dr Znaor is author of more than 140 peer-reviewed articles (Available from: https://www.ncbi.nlm.nih.gov/pubmed/?term=Znaor+A).

Dr Prashant Mathur is a pediatrician, having completed his post graduation and PhD in Pediatric Gastroenterology & Hepatology from the All India Institute of Medical Sciences (AIIMS) New Delhi. He has further experience in clinical epidemiology, program evaluation and evidence to policy translation. He initiated several major projects of ICMR, worked with WHO and was nodal officer of ICMR international collaborations with several agencies and universities.

At present, he is Director of the ICMR National Centre for Disease Informatics and Research, Bengaluru since May 2016 wherein work involves research on epidemiology, patterns of care and survival studies on cancer, stroke, cardiovascular diseases, diabetes and their risk factors. He is inc harge of the National Cancer Registry Program in India. The work at NCDIR informs policy and program for NCD prevention and control in India.

Dr Mathur has over 90 peer reviewed publications in national and international journals and chapters in 19 books.

CIBERESP's Scientific Director, Marina Pollán, is also Director of the National Epidemiology Center of the Carlos III Health Institute (CNE-ISCIII). Marina is a Doctor of Medicine specialising in preventive medicine and public health. Her doctoral thesis, dedicated to breast cancer, earned her the extraordinary doctorate award.

She has worked in cancer epidemiology at the CNE since 1990. In 2016, she attained status of research professor by competitive examination. In 2017, she was appointed scientific director of CIBERESP, leading one of the research groups of this consortium. Its priority area of reseach are on cancer risk factors, mainly those associated with lifestyle. Dr Pollan co-leads the multicenter project MCC-Spain, one of CIBERESP's strategic actions. She is the principal investigator of numerous studies generally related to breast cancer and a member of the Spanish Breast Cancer Research Group. Recently, she had assumed the coordination of the Chronic Diseases program at CIBERESP.

Marina has published more than 300 scientific articles (H index=33), in the field of epidemiology and control of cancer. She has been involved in outreach activities aimed at transferring existing knowledge about the cancer situation and its main risk factors to the general population. She has extensive teaching experience in different areas of cancer epidemiology and epidemiological methodology.

Dr. Lynne Penberthy is the Associate Director for the Surveillance Research Program (SRP), Division of Cancer Control and Population Sciences (DCCPS), US National Cancer Institute (NCI). She obtained her MD from the University of Michigan and her MPH in epidemiology at Johns Hopkins. Dr. Penberthy’s career includes a surgical internship in at the Sinai Hospital, Baltimore, Maryland, and a preventive medicine residency at Johns Hopkins University. She completed her post-doctoral training in epidemiology with the CDC as an epidemic intelligence service (EIS) officer. She is licensed to practice medicine in the state of Maryland.

Dr. Penberthy was the Director of Cancer Research Informatics and Services and Associate Professor of General Internal Medicine at the Virginia Commonwealth University Massey Cancer Center. She directed a team in the development of innovative software with the objectives of using existing data for clinical trials eligibility screening, automated capture of treatment data from oncology practice claims, and extraction of clinical characteristics from various electronic medical records (EMR) components. She was also involved in biobanking and annotation of specimens using clinical data. She has 20 years of experience in cancer surveillance and automation using secondary data. Dr. Penberthy has worked on more than 20 grants and contracts as well as 31 publications related to using secondary data and/or informatics tools for cancer surveillance and clinical trials assessment.


ENCR - IACR 2023 - 14 - 15 november 2023

Escuela Andaluza de Salud Pública (easp)


    • Web access: https://abbey.eventsair.com/attendeeapp/iacr-2023/encr2023iacr

the organizers

This 2023 Scientific Conference is organised jointly by the European Network of Cancer Registries (ENCR), the International Association of Cancer Registries (IACR) and hosted by the Escuela Andaluza de Salud Pública (EASP) as a forum for bringing together and exchanging knowledge among cancer registry professionals.

Contact us: IACR2023@abbey.ie


Monday, 13 November 2023

WORKSHOP 1 : Registration of treatment variables in Population Based Cancer Registries

(Nov 13, 09:00-12:30)

Faculty: Francesco Giusti, Otto Visser, Filip Ameye, Lien van Walle

Availability of treatment data and their level of detail substantially vary between Population Based Cancer Registries. The aim of this workshop is to present and discuss the recommendations for the collection and recording of treatment variables, compiled by the European Working Group on Treatment Data Harmonisation. Classification systems, terminology and data sources will be discussed and related to the treatment modalities, i.e. surgery, radiotherapy and systemic therapy (chemotherapy, targeted therapy, hormonal therapy, immunotherapy, etc.). Discussions will be included in the 4 topics:

• Recommendations on Treatment data recording

• Data sources, Classification and Terminology for Surgery

• Data sources, Classification and Terminology for Radiotherapy

• Data sources, Classification and Terminology for Systemic Therapy


Monday, 13 November 2023

WORKSHOP 2 : Population-based cancer survival metrics

(Nov 13, 09:00-12:30)

Faculty: Mark Rutherford

This workshop will describe a range of options for presenting survival-based metrics from population-based data. This will include metrics that are useful for reporting the impact of cancer on patient survival and approaches for making fair comparison across population groups (including international comparisons). The aim of the workshop is to give an overview of the methods that are available and their relative merits, rather than the technical details of their calculation (although relevant related references and links to software implementations will be given). The key topics that will be covered include:

• The key distinction between crude and net survival metrics.

• A contrast between estimation in a relative survival or cause-specific framework.

• The role of age-standardisation.

• Discussions around the most appropriate survival metrics for different audiences/purposes.

• Introduce alternative metrics such as gains in life expectancy and avoidable deaths.

• Discuss estimation approaches available in both a model-based and non-parametric setting.


Monday, 13 November 2023

WORKSHOP 3 : Recurrences

(Nov 13, 13:30-17:00)

Faculty: Anna Gavin, Otto Visser, Freija Verdoodt, Jenni Lai, Karen Graham, Luciana Neamtiu, Sinead Hawkins

  • Introductions and overview of the work to date
  • What is a cancer recurrence or progression (definitions, theory, background)
  • Experience of the Netherlands in recording recurrences of breast cancers and
  • resource implications
  • Automatic methods of recording likely cancer progression/ recurrence in England
  • Algorithms for solid and haematological malignancies – experience from the N. Ireland Cancer Registry.


Monday, 13 November 2023

WORKSHOP 4 : IT tools and novel AI approaches for cancer registration

(Nov 13, 13:30-17:00)

Faculty: Mats Lambe, Volker Arndt, Maciej Trojanowski, Łukasz Taraszkiewicz, Irmina Michałek, Siri Larønningen, Carolynn Gildea, Sean Mc Phail ,Alexander Katalinic, Marco Halber, Dimitris Katsimpokis, Maaike van Swieten, Kees Kleihues van Tol, Bianca Franke, Philipp Leppert

Cancer registries are currently facing challenges related to the implementation of increasingly advanced IT tools for data collection and analysis. These activities require significant financial investment and are not equally accessible to all countries. The aim of the workshop is to present experiences in developing applications and tools used in registries, particularly in the context of software coding principles according to ICD and guidelines published by ENCR and IACR.

The workshop will also showcase selected projects where tools utilizing AI are being developed to assist with coding, data extraction from patients' medical records (including treatment data), and data analysis.

Key topics:

  • Software, Applications, and IT Tools for Data Collection and Quality Assurance in Cancer Registries.
  • AI-Supported Solutions for Cancer Registries – Is It the Future of Data Collection and Analyses?

Thank you to the sponsors: